Among 394 respondents with bladder cancer, cystoscopy was associated with moderate to severe discomfort in 52%
Respondents who reported moderate to severe discomfort were more likely to describe their most recent cystoscopy discomfort as worse than prior and interested in planning discomfort mitigation for cystoscopy with their provider
Gender was the only factor independently associated with discomfort, with women reporting less discomfort than men
Patients report a wide and diverse range of cystoscopy-specific interventions with a range of perceived effectiveness, the most common being intraurethral lidocaine
To evaluate the degree of discomfort among patients with bladder cancer undergoing office-based cystoscopy and identify factors and interventions that influence discomfort and anxiety.
We conducted a survey of the Bladder Cancer Advocacy Network Patient Survey Network (BCAN PSN) to investigate the degree of discomfort associated with office-based cystoscopy and prevalence of interventions used to reduce discomfort. All patients had undergone at least one previous cystoscopy. Bivariable and multivariable logistic regression were used to identify factors associated with moderate-to-severe cystoscopy discomfort.
Among 488 BCAN PSN respondents (50% response rate), 392 responded with demographic data and discomfort score. Cystoscopy was associated with moderate-to-severe discomfort in 52% of patients. Respondents who reported moderate-to-severe discomfort were more likely to describe their most recent cystoscopy discomfort as worse than prior (P